TS Withdrawal Months 4-6

Some People Just Don’t Understand

Some people just don’t understand what I am going through and some people don’t want to take the time to understand.  I deal with people who prefer to belittle my experience by explaining it to them.  See, THIS IS NOT JUST A RASH, this is a severe medical condition caused by poisonous substances prescribed by medical doctors, created by pharmaceutical companies.  I am enduring great pain and suffering with more symptoms than I can stand. See my list of symptoms HERE.

Most recently I had a bad experience with a family member who is also suffering from a severe medical condition. She thinks that what she is dealing with is worse than what I am dealing with so what I am going through doesn’t even matter.  To that I say, “Sit down and listen!” What I am going through is not to even be remotely compared to your illness and I would NEVER belittle YOUR experience, so please don’t belittle mine.  I can only pray you get well soon and I wish you’d pray for me also, instead of throwing me under the bus.”

While I was still seething from that experience I visited the ITSAN.org forum again and found a really great post from a fellow TSW sufferer.  The topic of the conversation was/is, “Dealing with People Who Belittle Your Experience” and it came at just the right time.

This is what “ChemicallySound” posted and I thought it was great! They’re responses to people who need a response.

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TO ACQUAINTANCES UNFAMILIAR TO YOUR ISSUES:

“Are you familiar with Atopic Dermatitis and Topical Steroid Withdrawal? No? It’s a global issue where pharmaceutical companies are aligning with doctors to market and prescribe steroid creams such as Triamcinolone that are temporary reliefs to symptoms such as eczema. This synthetic product aggravates the skin and leaves many victims in a far worse condition than they began with and leaves them addicted because they are now dependent on this temporary relief. It’s like drinking alcohol to cure the hangover. I am an informed and reformed withdrawal patient and what I’m going through will take up to a couple years to heal. Thank you for your concern and I appreciate your observations that I am suffering. I wish you the best and if you have any questions on this global issue, feel free to ask me any questions. I consider myself knowledgeable on this issue and am dedicated to spreading awareness.”

I used that blurb almost word-for-word at a dinner party with CEO’s and billionaires (I’m a student that makes less than $5,000 per year and found myself trapped at this materialistic party). Felt pretty good to throw a sharp response to their meaningless statements like “You don’t look well. Do you take care of your skin?” It’s my big *-you.

TO “FRIENDS”:

“Thank you for your concern. I appreciate your support through these hard times where I am suffering through depression, constant physical pain, fatigue, and insomnia. Please check up on me regularly as it means a lot to me that you are thinking about me.”

In response to : Have you seen a doctor?

TO D-BAG FRIENDS WHO JUST DON’T GET IT:

“Dude. I may look messed up but I can still make you bite the curb. So shut up.”

Sounds a bit angry and harsh, but people recognize your strong-willed mind and respect the space you need. They think you’re in control. It’s great.

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Thank you CS! 🙂

Folks listen.  If you are somebody who can’t bring yourself to understand what someone suffering from TSW is going through, simply take the time to try to understand the experience.  Sure, everybody is going through something, but to belittle somebody else’s experience with an illness that IS a severe one is just plain ridiculous! You are NOT the other person and could not possibly feel what they feel. If you don’t have anything nice to say stop bumping your gums, sit back and pray for them.

TO THOSE OF YOU WHO SUPPORT ME, STAYED IN MY LIFE, PRAY FOR ME AND ARE LOVING ME THROUGH ALL OF THIS, YOU KNOW WHO YOU ARE AND I WANT TO THANK YOU FROM THE BOTTOM OF MY HEART!

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