This video was posted by my fellow sufferer friend Briana. The video she put together is not only informative but VERY entertaining. You GO Girl! This condition is a serious one and at times I feel like a lot of the people I know don’t truly understand what I have and am going through. Even… Continue reading Briana Explains Topical Steroid Withdrawal and Red Skin Syndrome
Okay folks, here is a little update for you all! As of this writing I am feeling good…still. No major flares, just itchy, flaky, shedding a bit and my skin is still burning a bit here and there. Oh and also today the chills are back a bit too. Ugh! My skin color is taking… Continue reading What’s Happening Now Nearing 22 Months
Hair Falling Out Got A New Wig So as many of you know from watching my videos my hair has been falling out due to this condition. At one point (about 3 months) it hadn’t been coming out too much but then it started back up again! Now granted, I am not bald or anything but… Continue reading Hair Falling Out Got A New Wig
This video right here says it all! Needless to say, I am SO HAPPY right now! I want to thank all of you who have been praying for me, wishing me a speedier recovery! It is so nice to get so much encouragement and support from all over the globe, wow! Plus, my family and… Continue reading April 2015 Update – Topical Steroid Withdrawal Major Flare Passes!
Well well well……I had another short break from flaring. This one was interesting because even the shedding eased up A LOT for me. It only lasted 2.5 days but it was great! I felt normal and my skin felt smoother. In fact my skin has been “feeling” better. I am still discolored but at least… Continue reading Breaking and Then Pain!
A lot of sufferers are losing their jobs either due to being laid off, getting fired or unable to work a regular job, so they quit, due to this horrific condition. There are a lot of opportunities for people who wish to work from home. Some corporate companies allow people to telecommute which is cool. … Continue reading Want to Work From Home?
Even through the trials and tribulations life has thrown at me over the years, some that even made me want to give up completely, including this mess, I feel so blessed and grateful to have some of the best family members and friends on this side of creation. People who truly love and care about… Continue reading I AM Loved