A Few Good Fingers Okay, so I have a few good fingers left and took some pictures of my beautiful thumb that is on my left hand for the first picture. My whole hand (both of them) used to be pretty. It’s also as smooth as butter and I have no clue why. I hope… Continue reading A Few Good Fingers
Okay, I don’t know if this has happened to any of you TSW Warriors, but my neck (yes I am talking about my neck again) decided to start itching like mad today, right in the front of it. So instead of using my finger nails (hands were covered up with latex free rubber gloves anyway)… Continue reading Ooze – A Major Fluid Leak From My Neck
When it Rains It Snows Okay, so I have not written about my experience in a while. I just haven’t felt up to it. I am in my 6th month now and have just endured a major flare, plus now my neck wants to really start acting up and my face is still a hot… Continue reading When it Rains It Snows
Some people just don’t understand what I am going through and some people don’t want to take the time to understand. I deal with people who prefer to belittle my experience by explaining it to them. See, THIS IS NOT JUST A RASH, this is a severe medical condition caused by poisonous substances prescribed by… Continue reading Some People Just Don’t Understand
A Skin Blizzard Flaking, shedding, peeling oh my! So like last night I awoke in an itching fit of rage and then the ooze started. I didn’t feel like getting up to get something to dry it up so I laid right there in my bed and fell back asleep. I woke up this morning… Continue reading A Skin Blizzard
The Dermatologist Appointment So yes, I went back to my Dermatologist nearly 2 weeks ago because I finally wanted him to SEE me. NOT to have him prescribe anymore steroid ointments, creams or pills. Here is how it went: 1. I walked into the NEW facility. It was beautiful. 2. While in the waiting… Continue reading The Dermatologist Appointment
I am still going through flaking stages with my face, neck, arms, legs and scalp. It’s not fun at all but it’s actually kind of funny to be able to tell people who mess with me jokingly, that if they do not stop I will flake on them! I mean, I can literally do just… Continue reading Flake Over Here Flake Over There
It’s been kind of rough today. Even though I am now in 4th month of topical steroid withdrawal, I am still feeling tired and itchy….a lot. I am still getting chills, still getting flares and some swelling of my face and hands. So far the rashes have eased from spreading but the flaking, occasional oozing… Continue reading Another Itchy Fatigued Day
